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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Affordable Care Act (Washington Update, February 27, 2019)
Need to Submit Documents to Confirm a Life Event? (Healthcare.gov blog, 2/7/19)
Other News, Information, and Resources (Washington Update, February 27, 2019)
FROM THE AGENCIES: Emergency Planning Toolkit for Aging and Disability Networks The new Capacity-Building Toolkit for Including Aging and Disability Networks in Emergency Planning (PDF, 114 pp), is intended to help aging and disability networks increase their ability...
Your Input Sought/Of Possible Interest (Washington Update, February 27, 2019)
YOUR INPUT SOUGHT NEW FEMA National Advisory Council – Due March 15, 2019 The Federal Emergency Management Agency (FEMA) is accepting applications until March 15, 2019, for 12 open positions on its National Advisory Council. They are seeking one person to fill the...
WEBINARS FROM THE FIELD (Washington Update, February 20, 2019)
SERIES: Pain Medication Education Christopher and Dana Reeve Foundation Part 2: Understanding Opioids and Opioid Addiction: Wednesday, February 20, 12:00-1:00 pm ET Part 3: What are my options for tapering opioids? Wednesday, March 13, 12:00-1:00 pm ET Past -- Part 1:...
THE COURTS (Washington Update, February 20, 2019)
Federal Court Agrees to Let Democrats Defend Obamacare in Court (The Hill, 2/14/19) As reported in earlier Washington Updates, a federal district court in Texas ruled, in Texas v. Azar, that the entire Affordable Care Act (ACA) is unconstitutional, as claimed by the...
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