Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update November 28, 2023

Congress is back in session this week and will look to work on some pending policy priorities before the end of the year. Read the full newsletter here

Washington Update November 15, 2023

The November 17th deadline to pass a federal budget is this Friday, and there is no agreement (on either a budget bill or a temporary, continuing resolution) needed to prevent a government shutdown. The new speaker of the House, Representative Johnson (R-LA), has...

Washington Update November 9, 2023

House and Senate lawmakers have just 10 days to avoid a shutdown, but no plan has emerged. Republican leaders are meeting this week to think about and discuss options such as: 1) another continuing resolution (CR) that extends the current temporary funding until the...

Washington Update October 31, 2023

The House has a Speaker! And so business resumes. This week, negotiations on the budget bills will resume. Read the full newsletter here

Washington Update October 25, 2023

The search for a speaker of the House continues. In the interim, Congress appears to be going about their business- to an extent. Remember that the budget approval is looming (11/17/23 deadline) and until a Speaker is elected, a vote on the appropriations bill- or any...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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