Quick Links
Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Webinars from the Field (Washington Update, March 14, 2019)
Identifying and Serving Children with Health Complexity: Spotlight on Pediatric Care Together Thursday, March 14, 1:30-2:30 pm ET Lucile Packard Foundation for Children’s Health The webinar will be a discussion about the report, Identifying and Serving Children with...
The Administration (Washington Update, March 14, 2019)
President’s Budget Proposal On Monday, March 11, the president released his budget proposal for FY 2020, which begins on October 1, 2019. Among other things, his budget proposes to turn Medicaid into a state block grant, and mandate that states establish work...
Congress (Washington Update, March 14, 2019)
Medical Expense Deduction On March 4, Senators Chuck Grassley (R-IA) and Ron Wyden (D-OR), Finance Committee Chairman and Ranking Member, respectively, introduced the Tax Extender and Disaster Relief Act of 2019 (S. 617). The bill would extend, for an additional two...
Medicaid News, Information, and Resources (Washington Update, March 14, 2019)
Medicaid Waivers Several states (MS, OK, SD, TN) have requested Medicaid waivers to establish “community engagement” (work, school) requirements on extremely low-income parents/caretakers of children on Medicaid. On March 6, over 50 healthcare organizations sent a...
Affordable Care Act (Washington Update, March 14, 2019)
Ask KFF: Karen Pollitz Answers 3 Questions on Why Insurers Deny Claims (Kaiser Family Foundation, 3/6/19) Shopping for a Short-Term Plan? The Information You Get about it Will Depend on Your State (blog of the Georgetown Center on Health Insurance Reform, 3/7/19)...
Encourage confidence to act