Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

The Administration (Washington Update, March 14, 2019)

President’s Budget Proposal On Monday, March 11, the president released his budget proposal for FY 2020, which begins on October 1, 2019. Among other things, his budget proposes to turn Medicaid into a state block grant, and mandate that states establish work...

Congress (Washington Update, March 14, 2019)

Medical Expense Deduction On March 4, Senators Chuck Grassley (R-IA) and Ron Wyden (D-OR), Finance Committee Chairman and Ranking Member, respectively, introduced the Tax Extender and Disaster Relief Act of 2019 (S. 617). The bill would extend, for an additional two...

Affordable Care Act (Washington Update, March 14, 2019)

Ask KFF: Karen Pollitz Answers 3 Questions on Why Insurers Deny Claims (Kaiser Family Foundation, 3/6/19) Shopping for a Short-Term Plan? The Information You Get about it Will Depend on Your State (blog of the Georgetown Center on Health Insurance Reform, 3/7/19)...

TRICARE (Washington Update, March 14, 2019)

What is a TRICARE Qualifying Life Event? (TRICARE Benefit Update, 3/7/19) WORTH REPEATING: Everything You Need to Know about Filing Medical Claims (TRICARE Benefits Update, 3/1/19)

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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