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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, March 14, 2019)
YOUR INPUT SOUGHT NEW Survey to Improve Caregiver Hospital Experience The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies...
REMEMBERING A FRIEND OF FAMILY VOICES: ROB RESTUCCIA
The world of health care advocacy lost a powerful but modest leader, Rob Restuccia, who was considered by many to be the “father of health care reform.” In the words of Family Voices Executive Director Nora Wells, “In creating and leading Health Care for All, the...
FAMILY VOICES AT AMCHP!
If you are heading to San Antonio this weekend for the annual Association of Maternal and Child Health Programs Conference, be sure to stop by the Family Voices table in Exhibit Hall. Some events you can find FV staff at are: FV and P2P Exhibit Table: Check out the...
Kicking Off DD Awareness Month
Kicking Off DD Awareness Month (ACL Bulletin, 3/1/19) March 1 marks the first day of Developmental Disabilities Awareness Month. All month, ACL will be sharing blogs and resources through our listserv and Facebook and Twitter pages. We hope you will join us in...
Webinars from the Field (Washington Update, March 6, 2019)
SERIES: Pain Medication Education Christopher and Dana Reeve Foundation Part 3: What Are My Options for Tapering Opioids? Wednesday, March 13, 12:00-1:00 pm ET Past -- Part 1: "What is my pain medication?" Video; Info. Past -- Part 2: Understanding Opioids and Opioid...
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