Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Questions and Car Rides: The Journey of a Family Leader

by Coralaidee Jimenez Burgos, Family Representative with The Puerto Rico Department of Health Welcoming Felix When Felix was born, my soul was filled with joy, a love so strong it’s hard to describe. He was my lifelong dream come true. But my joy was short-lived;...

Meet Your F2F: Mississippi

Families as Allies was established in Mississippi in 1992 as the state chapter of the National Federation of Families and the only statewide organization run by and for families of children with mental health challenges. We support each other and work together to make...

New Report on Equitable Language Access in the Health Care Setting

Greater use and better quality of language access services in the health care setting can help children and youth with special health care needs experience better health outcomes. Family Voices completed an environmental scan, with the participation of over 600...

New Info Brief on Moving to Adult Health Care

Family Voices, in partnership with the Arc of the United States' National Center on Criminal Justice and Disability and the Center for Transition to Adult Health Care for Youth with Disabilities, just released an info brief called "Meeting the Health Care Transition...

Washington Update Dec 5, 2023

The first full week of December finds both the House and Senate busy at work to realize a number of priorities before the end of the year. Read the full newsletter here

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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