Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

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About Family Voices

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Our Team

Diversity, equity, inclusion, and belonging.

Our DEIB Framework

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Click on the map or select a state or territory:

Family Voices News

Washington Update November 15, 2023

Nov 15, 2023

The November 17th deadline to pass a federal budget is this Friday, and there is no agreement (on either a budget bill or a temporary, continuing resolution) needed to prevent a government shutdown. The new speaker of the House, Representative Johnson (R-LA), has...

Washington Update November 9, 2023

Nov 9, 2023

House and Senate lawmakers have just 10 days to avoid a shutdown, but no plan has emerged. Republican leaders are meeting this week to think about and discuss options such as: 1) another continuing resolution (CR) that extends the current temporary funding until the...

Washington Update October 31, 2023

Oct 31, 2023

The House has a Speaker! And so business resumes. This week, negotiations on the budget bills will resume. Read the full newsletter here

Washington Update October 25, 2023

Oct 25, 2023

The search for a speaker of the House continues. In the interim, Congress appears to be going about their business- to an extent. Remember that the budget approval is looming (11/17/23 deadline) and until a Speaker is elected, a vote on the appropriations bill- or any...

Washington Update October 19, 2023

Oct 19, 2023

Both the Senate and House are in session this week… sort of. The House has been unable to elect a Speaker so much of their business is on hold. Read the full newsletter here

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of