Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update, March 5, 2020

In the Update this week: The Supreme Court has decided that it will hear oral arguments in the ACA case during next year’s term, which begins in October 2020. A decision is not likely to be rendered until the following spring. The novel coronavirus of 2019 is taking...

Washington Update, February 26, 2020

In the Update this week: The “public charge” rule went into effect nationwide on February 24. Resources for families are provided below. Congress is still working on legislation to address surprise medical bills and prescription drug prices. The Kaiser Family...

Washington Update, February 19, 2020

In the Update this week: A federal court of appeals upheld the district court’s decision to invalidate the waiver granted to Arkansas that would have allowed the state to implement work requirements as a condition of Medicaid eligibility. The Supreme Court indicated...

Washington Update, February 13, 2020

In the Update this week: The president released his proposed FY 2021 budget. It proposes significant cuts to Medicaid and some other health programs, but is considered “dead on arrival” in Congress. A House committee approved another version of legislation to address...

Washington Update, February 5, 2020

There are two big healthcare news items this week, both generated by the Centers for Medicare and Medicaid Services (CMS): CMS issued its long-expected Medicaid “block grant” guidance, outlining how states can obtain waivers to gain greater flexibility in their...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of