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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Office for Civil Rights – Letter on Civil Rights Language Access Requirements
On December 5, the Office for Civil Rights (OCR) released a “Dear Colleague” letter to help providers and other better understand their responsibilities under Section 1557 of the Affordable Care Act (“Section 1557”). According to recent census data, nearly 68 million people in the United States speak a language other than English at home. Having access to language assistance is critical to achieving equity in health care.
2024 Data Profile on Health Care Transition
2024 Profile on Health Care Transition for Youth with Intellectual and Developmental Disabilities
Family Voices Launches Free Online Language Access Course
My Language, My Care helps families learn more about language access. By the end of the course, participants will understand their rights under the law, know more about interpreter confidentiality, and have the tools to advocate for high quality language access services in the health care setting.
What is a lame duck session?
The lame duck session is any meeting of the House of Representatives or Senate that takes place after a November election and before the new Congress starts their new session. This also applies to presidents and other lawmakers who are retiring or did not win their...
NIH Strategic Plan for Disability Research
The National Institutes of Health is in the first stage of developing an agency-wide NIH Strategic Plan for Disability Research. The strategic plan will identify scientific themes and develop operational goals and objectives to advance research activities that promote...
Encourage confidence to act