Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Nuevo recurso – Julio de 2025

Echa un vistazo a los recursos de Family Voices y nuestros socios. Los recursos del equipo de políticas de Family Voices están disponibles en inglés y español, y se están traduciendo a otros idiomas. Los recursos de nuestros socios están principalmente en inglés....

Lista de próximos eventos – Julio del 2025

Para más información e inscripción para los eventos que se celebrarán tanto virtualmente como en todo el país. 8 - 10 de septiembre - Para más información e inscribirse en la Conferencia Anual de la Academia Nacional de Política de Salud Pública 2025 (NASHP, por sus...

1115 Waiver Amendments – July 2025 Update: Open Comment Periods

Learn more about proposed Medicaid 1115 Waiver amendments for Kentucky, South Carolina, Maine, and Illinois. For more information, reach out to Wesley at publicpolicy@familyvoices.org. Kentucky – Kentucky’s 1115 proposal would refer Medicaid expansion adults, aged...

The Big Beautiful Bill Act is Law. Now What?

On July 4, 2025, President Donald Trump signed the One Big Beautiful Bill Act (OBBA) into law. According to the Congressional Budget Office (CBO), the bill will reduce federal Medicaid spending by approximately $1 trillion over the next ten years, with the largest...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
P.O. Box 3162
South Attleboro, MA 02730

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.