Quick Links
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid’s Early and Periodic Screening, Diagnostic and Treatment (EPSDT) State Health Official (SHO) Guidance
What is EPSDT? EPSDT is a benefit for children that sets a higher standard for care than adults. What does EPSDT cover? Under the benefit, states must cover all “medically necessary” services needed to address the health and well-being of the child. This includes...
New Learning Collaborative Cohort on Financing Services for CYSHCN
Learning Collaborative Cohort 2 This Learning Collaborative (LC) will improve Family Engagement and Leadership in Systems of Care (FELSC). Family Voices leads this MCHB-funded cooperative agreement, and the Learning Collaborative is led by Family Voices and the...
AMCHP is Partnering with Family Voices for National Coordinating Center on Transition
The Project, which started on September 1, 2024, aims to develop and advance national, state, and local/community frameworks that support a successful transition from child to adult serving systems for youth with autism and/or epilepsy who have complex health and...
Two Pioneers Honored for Lifetime Achievements in Helping Children with Medical Complexity
The Maternal and Child Health Bureau’s Children and Youth with Special Health Care Needs Research Network (CYSHCNet) is pleased to announce Nora Wells and John Gordon as the 2024 recipients of The Pediatric Complex Care Lifetime Achievement Award.
Questions and Car Rides: The Journey of a Family Leader
by Coralaidee Jimenez Burgos, Family Representative with The Puerto Rico Department of Health Welcoming Felix When Felix was born, my soul was filled with joy, a love so strong it’s hard to describe. He was my lifelong dream come true. But my joy was short-lived;...
Encourage confidence to act