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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update March 16, 2022
Ladies and gentlemen, we have a budget! Late last week, the Senate passed a $1.5 trillion omnibus spending package (text; summary). The 2700 page bill combines 12 appropriations bills and will fund the federal government through the end of its fiscal year in September...
New Vaccine Findings Pose Tough Questions for Parents of Young Children (NYTimes, March 10, 2022)
The F.D.A. temporarily halted efforts to authorize the Pfizer-BioNTech vaccine for young children amid several unexpected findings. The coming weeks should bring clarity. Read more.
Washington Update March 9, 2022
It wouldn’t be a week in Washington if a deadline with a fiscal cliff wasn’t looming! As both chambers of Congress kick off the March legislative work session this week there is likely to be a lot of roaring as they deal with a March 11 government funding deadline, a...
White House Unveils COVID Plan Focused On People With Disabilities (Disability Scoop 2.28.2022)
2.28.2022 - Following criticism from disability advocates, the Biden administration is taking new steps to better address the needs of people with disabilities during the ongoing COVID-19 pandemic. Read more.
CDC Adds IDD To List Of Conditions At Increased Risk From COVID-19 (Disability Scoop 3.7.2022)
3.7.2022 - Nearly two years into the pandemic, the Centers for Disease Control and Prevention is for the first time acknowledging that people with intellectual and developmental disabilities have an elevated risk of severe disease from COVID-19. Read more.
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