Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.  We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Click here to find help.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)

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Family Voices News

Washington Update January 16, 2020

It has been fairly quiet in the health policy world this week, but there are a number of good webinars coming up and several opportunities for submitting public comments on significant proposed rules, nominations, and Medicaid waivers, as well as concerns and ideas...

Washington Update, December 19, 2019

BREAKING NEWS: A federal court of appeals has ruled on the case challenging the constitutionality of the Affordable Care Act (ACA), Texas v. United States. Key protections of the law remain in place pending further court action. See “ACA” section in this week's...

Washington Update, December 11, 2019

This week Members of Congress unveiled several bills that could affect families of children and youth with special health care needs. A conference agreement on the defense authorization bill would provide paid parental leave to all federal employees. This bill is...

Washington Update December 4, 2019

Congress is struggling to agree on funding for the federal government beyond December 20, when the temporary funding measure expires. It is unclear whether there will be resolution on legislation to address the thorny issues of surprise medical billing and...

Washington Update, November 20, 2019

Congress is still working away on FY 2020 appropriations, and legislation to address surprise medical billing and prescription drug prices. Meanwhile, the Centers for Medicare and Medicaid Services (CMS) has been very busy. The agency released a significant proposed...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of