Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.  We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Click here to find help.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)

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Family Voices News

Washington Update, October 30, 2020

Greetings from Washington, DC In this Update: The administration has issued an interim final rule weakening the “Maintenance of Effort” requirement that states must meet to receive an enhanced Medicaid match during the COVID Public Health Emergency. States may now...

New! Family Voices Telehealth Checklist & Worksheet

The year 2020 has changed many things, and how we operate in the world around us. One of the biggest changes, has been in the area of healthcare, and the shift to more services being delivered through telehealth or telemedicine. Families across the country have had to...

Washington Update, October 21, 2020

Greetings from Washington, DC In this Update: The prospects for legislation to address the pandemic’s financial impact are very dim. The Senate is expected to vote on Monday to confirm Judge Amy Coney Barrett to the Supreme Court. The Maternal and Child Health Bureau...

Shared Decision Making Worksheet for COVID-19 Prevention

Shared Decision Making (SDM) is highlighted as being critical to navigating COVID-19 together with families and providers by the American Academy of Pediatrics (AAP), interim guidance, Caring for Children and Youth With Special Health Care Needs During the COVID-19...

Washington Update, October 9, 2020

The prospects for legislation to address the pandemic’s financial impact are very unclear at the moment, but it is still within the realm of possibility that an agreement will be reached before the election. Hearings begin next week on the nomination of Judge Amy...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of