Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.  We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Click here to find help.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)

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Family Voices News

Washington Update February 2, 2021

The major issues covered in this Update are: New ACA Special Enrollment Period on healthcare.gov, February 13 through May 15 Presidential order to identify and address policies hindering access to health care coverage Efforts to pass another COVID-relief bill Report...

Family Voices CARES Act Telehealth Curricula Launch!

January 27 | 3:00-4:00 EST Register Today! During this session, Family Voices will share details about The Fab 4 for a Family-Centered Telemedicine Appointment curriculum, which includes prerecorded webinars, customizable PowerPoints with speaker notes, and more...

Washington Update January 14, 2021

The major issues covered in this Update are: Enactment of the COVID-relief and FY 2021 appropriations bill Medicaid news, including: Extension of the Public Health Emergency (PHE) and consequent extension of the enhanced federal match, maintenance-of-effort...

Family Voices wins HRSA CSHCN Grand Challenge!

Family Voices National is honored to be one of the winners of HRSA's Maternal and Child Health Bureau (MCHB) Care Coordination for Children with Special Health Care Needs (CSHCN) Challenge. Led by Cara Coleman, Family Voices National was part of a multidisciplinary...

Washington Update December 15 2020

The big issues in DC right now are: FDA authorization for emergency use of coronavirus vaccines – On Thursday, an FDA advisory committee recommended that the FDA grant “emergency use authorization” (EUA) of the vaccine developed by Pfizer for individuals age 16 and...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of