Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

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About Family Voices

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Our Team

Diversity, equity, inclusion, and belonging.

Our DEIB Framework

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update December 21, 2022

Dec 21, 2022

We have a draft Omnibus bill… and 3 days to pass it! The continuing resolution to fund the government ends on December 23rd, so Congress has until midnight on that day to either pass this bill or another continuing resolution to avoid the government shutdown.4,155...

Washington Update December 9, 2022

Dec 9, 2022

Talks on a year-end government funding package continue among leadership. As it currently stands, the "four corners" (meaning the democratic and Republican leaders of the committee in each house of congress) leaders of the House and Senate Appropriations Committees...

Washington Update December 6, 2022

Dec 6, 2022

This week preventing a strike of railway workers is demanding the attention of Congress but rest assured legislators have not lost sight of the December 16th deadline for the budget. Will there be an end of the year omnibus bill that sets the budget? Will be robust...

Washington Update November 21, 2022

Nov 21, 2022

Both houses of Congress returned this week to kick off a busy "lame duck" session to close out the 117th Congress. The date to watch, other than the end of the year, is December 16th, when government funding is set to expire. What is a lame duck session? This is the...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of