Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

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About Family Voices

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Our Team

Diversity, equity, inclusion, and belonging.

Our DEIB Framework

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update March 31, 2023

Mar 31, 2023

Long COVID Legislation On March 15th, Senator Kaine (D-VA) and 10 Democratic co-sponsors, along with Representative Beyer (D-VA-8th) and Representative Bergman (D-MI-1st), introduced the Comprehensive Access to Resources and Education (CARE) for Long COVID Act...

Washington Update March 15, 2023

Mar 15, 2023

House lawmakers are out until March 22, and the Senate returns this week. Following the release of the president’s fiscal year (FY) 2024 budget request late last week, several Biden Administration officials will be up on the Senate side testifying on the requests for...

Washington Update March 8, 2023

Mar 8, 2023

In Memoriam On March 4th, Judy Heumann, lifelong leader disability rights advocate, passed away. The following is an excerpt from a tribute written by the Consortium for Constituents with Disabilities (CCD): Judy’s life story is well documented by herself and others....

Washington Update March 2, 2023

Mar 2, 2023

Legislative Updates Both the Senate and the house are back in session and have begun the March legislative work period. Read the full newsletter here

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of