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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Bill on Children’s Hospice and Palliative Care under Medicaid (Washington Update, August 22, 2018)
On July 26, Rep. Diana DeGette (D-CO) and others introduced a bipartisan bill -- The Children's Program of All-Inclusive Coordinated Care (ChiPACC) Act (H.R. 6560) – which would fill gaps in hospice and palliative services that children now receive under Medicaid. The...
News from Medicaid (Washington Update, August 22, 2018)
From the CMS Newsroom: Aug. 16 -- CMS Streamlines Medicaid Review Process, Achieves Significant Reduction in Approval Times. “…Today, CMS issued a second Informational Bulletin related to [state plan amendment (SPA)] and 1915 waiver process improvements. This Bulletin...
Medicaid Waiver News (Washington Update, August 22, 2018)
Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The court’s...
Affordable Care Act News (Washington Update, August 22, 2018)
Clarification of “Exceptional Circumstances” SEP for Consumers Impacted by Disasters An August 20 email from the Health Insurance Marketplace announced: “CMS has released guidance clarifying Federally-facilitated Marketplace (FFM) Special Enrollment Period (SEP)...
TRICARE News (Washington Update, August 22, 2018)
August 23 Webinar: Bring Your TRICARE Benefit Questions to August 23 Webinar (article) Webinar: Ask TRICARE -- Thursday, August 23, 1:00-2:00 pm ET. Register. Benefit Updates: Using Your TRICARE Benefit with Other Health Insurance (TRICARE Benefit Update, 8/7/18) How...
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