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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid Waiver News (Washington Update, August 29, 2018)
Wyden, Pallone Warn Trump Administration against Moving Forward on Harmful Medicaid Waivers The Ranking Democratic Members of the House and Senate committees with jurisdiction over Medicaid – Rep. Frank Pallone (D-NJ) and Sen. Ron Wyden (D-OR) – wrote to Secretary of...
Affordable Care Act (ACA) News (Washington Update, August 29, 2018)
From the blog of the Georgetown University Health Policy Center’s Center on Health Insurance Reforms: Major State Medical Association Warns Consumers about Health Care Sharing Ministries Impact of Association Health Plans on Consumers and Markets Will Depend on State...
News from TRICARE and the State Department (Washington Update, August 29, 2018)
Both Military and Foreign-Service Families Seek Better Care for Their Children with Special Health Care Needs “We Are Just Tired of This Fight”: Special-needs families say military is still failing them As explained in the above article from Stars & Stripes...
News, Information, Resources (Washington Update, August 29, 2018)
CDC Expands Autism Monitoring Efforts (Disability Scoop, 8/23/18) The Centers for Disease Control and Prevention (CDC) has announced the availability of research grants to assess 16-year-olds who were previously identified as having autism symptoms when they were age...
Your Input Sought/Of Possible Interest (Washington Update, August 29, 2018)
Your Input Sought NEW Survey on attending genetics appointments after referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration –...
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