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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
CONGRESS: Opioid Legislation/Appropriations (Washington Update, October 3, 2018)
Opioid Legislation On September 28, by a vote of 393-8, the House passed a bill to address the nation’s opioid epidemic – the Substance Use-Disorder Prevention that Promotes Opioid Recovery and Treatment for Patients and Communities Act, or the SUPPORT for Patients...
Medicaid News/Resources (Washington Update, October 3, 2018)
EPSDT webinar recordings and materials: Webinar recording and slides: EPSDT Education for Providers and Advocates. Webinar recording and slides: Medical Necessity and EPSDT: Tools for Providers and Advocates AAP State EPSDT Profiles, which provide insight and detailed...
Medicaid Waivers (Washington Update, October 3, 2018)
FYI, see Trump administration defends Medicaid work requirements (The Hill, 9/27/18). Update: Michigan proposes to amend its “Healthy Michigan Plan” to require Medicaid beneficiaries with income between 100 percent and 133 percent of the federal poverty level (FPL) to...
TRICARE (Washington Update, October 3, 2018)
Together We Can Prevent Suicide (TRICARE Benefit Update, 9/27/18) – provides links to resources to military and TRICARE resources related to mental health care and suicide prevention. Worth repeating: Use TRICARE Online Tools to Help You Choose a Health Plan (TRICARE...
Your Input Sought/Of Possible Interest/Announcement (Washington Update, October 3, 2018)
Your Input Sought Survey on Attending Genetics Appointments after Referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration – is...
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