Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

THE ADMINISTRATION (Washington Update, October 3, 2018)

Julie Hocker joins ACL as Commissioner of the Administration on Disabilities (Administration on Community Living Newsroom, 10/1/18). More on the Proposed “Public Charge” Rule For many months it has been expected that the administration would issue a rule redefining...

Medicaid News/Resources (Washington Update, October 3, 2018)

EPSDT webinar recordings and materials: Webinar recording and slides: EPSDT Education for Providers and Advocates. Webinar recording and slides: Medical Necessity and EPSDT: Tools for Providers and Advocates AAP State EPSDT Profiles, which provide insight and detailed...

Medicaid Waivers (Washington Update, October 3, 2018)

FYI, see Trump administration defends Medicaid work requirements (The Hill, 9/27/18). Update: Michigan proposes to amend its “Healthy Michigan Plan” to require Medicaid beneficiaries with income between 100 percent and 133 percent of the federal poverty level (FPL) to...

TRICARE (Washington Update, October 3, 2018)

Together We Can Prevent Suicide (TRICARE Benefit Update, 9/27/18) – provides links to resources to military and TRICARE resources related to mental health care and suicide prevention. Worth repeating: Use TRICARE Online Tools to Help You Choose a Health Plan (TRICARE...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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