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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Of Possible Interest (Washington Update, October 25, 2018)
Down Syndrome Association steps up efforts to reach minority families in central Ohio (Columbus Post Dispatch, 10/16/18) Study: High-deductible employer plans contribute to financial burden for low-income patients (FierceHealthcare, 10/9/18)
Your Input Sought (Washington Update, October 25, 2018)
MCHB Grand Challenges – deadline extended to Nov. 9 for CYSHCN Challenge As reported earlier, the Maternal and Child Health Bureau will award four prizes in a Grand Challenges competition to develop innovative, low-cost, and scalable solutions to improve the health of...
Resources for Open Enrollment (Washington Update, October 25, 2018)
2019 Open Enrollment runs from November 1 through December 15, 2018 Plans sold during Open Enrollment start January 1, 2019. After December 15, consumers can enroll in 2019 health insurance only if they qualify for a Special Enrollment Period. Resources for...
Webinars from the Field (Washington Update, October 11, 2018)
Certification for I&R Specialists in Aging/Disabilities (CIRS-A/D) Webinar Training Thursday, October 11, 1:00-5:00 pm ET (4 hours) National Information and Referral Support Center, National Association of States United for Aging and Disabilities (The webinar will...
For Those Assisting Victims of Hurricane Florence (Washington Update, October 11, 2018)
[From Health Insurance Marketplace email of 9/20/18. No URL found for this info.] On August 9, 2018, CMS released guidance clarifying Federally-facilitated Exchange (FFE) Special Enrollment Period (SEP) policy for consumers impacted by an emergency or major disaster...
Encourage confidence to act