Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Enlarge Map

Click on the map or select a state or territory:

Family Voices News

Your Input Sought (Washington Update, October 25, 2018)

MCHB Grand Challenges – deadline extended to Nov. 9 for CYSHCN Challenge As reported earlier, the Maternal and Child Health Bureau will award four prizes in a Grand Challenges competition to develop innovative, low-cost, and scalable solutions to improve the health of...

Resources for Open Enrollment (Washington Update, October 25, 2018)

2019 Open Enrollment runs from November 1 through December 15, 2018 Plans sold during Open Enrollment start January 1, 2019.  After December 15, consumers can enroll in 2019 health insurance only if they qualify for a Special Enrollment Period. Resources for...

Webinars from the Field (Washington Update, October 11, 2018)

Certification for I&R Specialists in Aging/Disabilities (CIRS-A/D) Webinar Training Thursday, October 11, 1:00-5:00 pm ET (4 hours) National Information and Referral Support Center, National Association of States United for Aging and Disabilities (The webinar will...

THE COURTS (Washington Update, October 11, 2018)

The Supreme Court began its October term on October 1, and now has its new ninth member, Brett Kavanaugh, who replaced retired Justice Anthony Kennedy, for whom Kavanaugh once served as a clerk. Kavanaugh was sworn in shortly after being confirmed on Saturday, October...

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of