Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Greetings from Washington (Washington Update, October 25, 2018)

The Senate has joined the House in a pre-election recess. Both chambers will return to DC on November 13. Meanwhile, the administration has been very active in the health care sphere.  During the past two weeks, the administration appointed a new head of the Center...

Upcoming Webinars and Calls (Washington Update, October 25, 2018)

 NEW SERIES 2019 Assister Readiness Webinars, from the Centers for Medicare and Medicaid Services (CMS).  To receive invitations to the live webinars and notifications when new material is posted, email ASSISTERLISTSERV@cms.hhs.gov with “Add to listserv” as the...

The Administration (Washington Update, October 25, 2018)

New administrator for the Center for Medicaid and CHIP Services The Trump administration has appointed Mary Mayhew to be the new head of the Center for Medicaid and CHIP Services (CMCS), which is within the Centers for Medicare and Medicaid Services (administered by...

Congress (Washington Update, October 25, 2018)

Congress is in recess until after the elections. This is a good time to visit your Senators and Representatives in their local offices to educate them about children with special health care needs, the needs of their families, and your state’s Family-to-Family Health...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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