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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, October 31, 2018)
FDA Asks For Comments on Labeling Sesame Ingredients in Foods The Food and Drug Administration (FDA) has issued a “Request for Information” requesting input from the public about whether it should require that sesame be listed as an ingredient on food labels to help...
Your Input Sought/Announcements/Of Possible Interest (Washington Update, October 31, 2018)
YOUR INPUT SOUGHT Nominations Sought for Federal Family Caregiving Advisory Council – due Dec. 3 The Secretary of Health & Human Services (HHS) has posted a Notice requesting nominations for individuals to serve on the Family Caregiving Advisory Council, which was...
Greetings from Washington (Washington Update, October 25, 2018)
The Senate has joined the House in a pre-election recess. Both chambers will return to DC on November 13. Meanwhile, the administration has been very active in the health care sphere. During the past two weeks, the administration appointed a new head of the Center...
Upcoming Webinars and Calls (Washington Update, October 25, 2018)
NEW SERIES 2019 Assister Readiness Webinars, from the Centers for Medicare and Medicaid Services (CMS). To receive invitations to the live webinars and notifications when new material is posted, email ASSISTERLISTSERV@cms.hhs.gov with “Add to listserv” as the...
The Administration (Washington Update, October 25, 2018)
New administrator for the Center for Medicaid and CHIP Services The Trump administration has appointed Mary Mayhew to be the new head of the Center for Medicaid and CHIP Services (CMCS), which is within the Centers for Medicare and Medicaid Services (administered by...
Encourage confidence to act