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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, November 8, 2018)
WORTH REPEATING: State Strategies for Shared Plans of Care to Improve Care Coordination for Children and Youth with Special Health Care Needs (National Academy for State Health Policy, 10/29/18) Proposed rule on immigrant “Public Charge” determinations Please see the...
Your Input Sought/Announcements/Of Possible Interest (Washington Update November 8, 2018)
Your Input Sought Nominations Sought for Federal Family Caregiving Advisory Council – due Dec. 3 The Secretary of Health & Human Services (HHS) has posted a Notice requesting nominations for individuals to serve on the Family Caregiving Advisory Council, which was...
Resources for Open Enrollment (Washington Update, October 31, 2018)
2019 Open Enrollment Runs from November 1 through December 15, 2018 Plans sold during Open Enrollment start January 1, 2019. After December 15, consumers can enroll in 2019 health insurance only if they qualify for a Special Enrollment Period. Federal Health Insurance...
Webinars from the Field (Washington Update, October 31, 2018)
NEW Guardianship: Consider the Alternatives Wednesday, October 31, 12:00-1:00 pm ET Vermont Family Network NEW The NIH All of Us Research Program and Precision Medicine: Reflections from a Rural State Wednesday, October 31, 2:00-3:30 pm ET University of Montana Rural...
The Administration (Washington Update, October 31, 2018)
New HRSA Data Website The Health Resources and Services Administration (HRSA) has unveiled a new data and information website at https://data.hrsa.gov/. The website user can find health centers and health shortage areas, and can obtain fact sheets about HRSA...
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