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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
The Courts (Washington Update, January 9, 2019)
Update on Texas v. Azar -- Challenge to the ACA As reported in the last Update, in December a federal district court held that the entire ACA is unconstitutional in Texas v. Azar (also known as Texas v. United States), a case brought by the attorneys-general in 20...
Medicaid, CHIP, and ACA News, Information, and Resources (Washington Update, January 9, 2019)
Managed Care Comments Due on January 14 As reported earlier, and explained in the “Your Input Sought” section below, the administration issued a proposed rule on Medicaid/CHIP managed care on November 14. Comments are due on January 14. See Proposed Changes to...
TRICARE (Washington Update, January 9, 2019)
New to TRICARE? The Basics You Need to Know Jan. 3, 2019 Calendar Year Costs for TRICARE Resets Jan. 1 Dec. 18, 2018 TRICARE implemented in 2018 include changing cost limits from a fiscal-year cycle to a calendar-year cycle. Therefore, annual catastrophic caps and...
Other News, Information, and Resources (Washington Update, January 9, 2019)
New National Center on Advancing Person-Centered Practices and Systems The Administration for Community Living and the Centers for Medicare & Medicaid Services recently announced the launch of the National Center on Advancing Person-Centered Practices and Systems...
Your Input Sought (Washington Update, January 9, 2019)
Comments to CMS about Proposed Rule on Medicaid/CHIP Managed Care – due Jan. 14, 2019 On November 8, the Centers for Medicare & Medicaid Services (CMS) issued a Notice of Proposed Rule Making (NPRM) (proposed rule) to amend the 2016 managed care final rule issued...
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