Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Webinars from the Field (Washington Update, November 8, 2018)

It Takes a Village (about addressing Utah's Native Hawaiians/Pacific Islanders’ high rates of infant mortality) Thursday, November 8, 11:00 am ET Utah Office of Health Disparities Maternal Opioid Misuse (MOM) Model - Overview Thursday, November 8, 12:00-1:00 pm ET...

Elections (Washington Update, November 8, 2018)

U.S. House of Representatives: The House “flipped” from a Republican to a Democratic majority. The Democrats needed to gain 23 seats; they gained 27. The total count is not yet in, but the Democrats will have at least 220 seats and the Republicans 195. (218 is a...

Congress (Washington Update, November 8, 2018)

Recess Congress is in recess until November 13. You can find town halls and other public events at which your Members of Congress will appear at https://townhallproject.com/. This is a good time to educate Members of Congress about children with special health care...

Affordable Care Act (Washington Update, November 8, 2018)

REMEMBER: 2019 Open Enrollment runs from Nov. 1 through Dec. 15, 2018. New Guidance Reinterprets Section 1332 Waivers (Say Ahhh! blog of the Georgetown Center on Children and Families, 11/1/18) – This article explains the recent changes to the criteria that CMS will...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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