Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Enlarge Map

Click on the map or select a state or territory:

Family Voices News

Elections (Washington Update, November 8, 2018)

U.S. House of Representatives: The House “flipped” from a Republican to a Democratic majority. The Democrats needed to gain 23 seats; they gained 27. The total count is not yet in, but the Democrats will have at least 220 seats and the Republicans 195. (218 is a...

Congress (Washington Update, November 8, 2018)

Recess Congress is in recess until November 13. You can find town halls and other public events at which your Members of Congress will appear at https://townhallproject.com/. This is a good time to educate Members of Congress about children with special health care...

Affordable Care Act (Washington Update, November 8, 2018)

REMEMBER: 2019 Open Enrollment runs from Nov. 1 through Dec. 15, 2018. New Guidance Reinterprets Section 1332 Waivers (Say Ahhh! blog of the Georgetown Center on Children and Families, 11/1/18) – This article explains the recent changes to the criteria that CMS will...

TRICARE (Washington Update, November 8, 2018)

TRICARE Open Season runs from November 12 through December 10. This webinar offers information about it: Open Season is Here! Your Guide to TRICARE Open Season and Federal Benefits Open Season, Thursday, November 15, 1:00 -2:00 ET. Will Your Dentist Scream or Beam...

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of