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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Announcements/Of Possible Interest (Washington Update, November 30, 2018)
YOUR INPUT SOUGHT Nominations Sought for Federal Family Caregiving Advisory Council – due Dec. 3 The Secretary of Health & Human Services (HHS) has posted a Notice requesting nominations for individuals to serve on the Family Caregiving Advisory Council, which was...
Webinars from the Field (Washington Update, November 16, 2018)
Strengthening Care Delivery Systems for Children with Special Health Care Needs and the Role of Quality Measurement Wednesday, November 28, 2:00-3:00 pm ET National Academy for State Health Policy Early Childhood and Medicaid 101: The Tip of the Iceberg Wednesday,...
Resources for Open Enrollment (Washington Update, November 16, 2018)
2019 Open Enrollment Runs from November 1 through December 15, 2018 Plans sold during Open Enrollment start January 1, 2019. After December 15, consumers can enroll in 2019 health insurance only if they qualify for a Special Enrollment Period. Federal Health Insurance...
The Elections (Washington Update, November 16, 2018)
U.S. House of Representatives: As reported last week, the House “flipped” from a Republican to a Democratic majority for the next Congress (which begins on January 3, 2019). The total count is not yet in, but at this point the Democrats have 226 seats and the...
Congress (Washington Update, November 16, 2018)
Members of Congress returned from their pre-election recess on Tuesday for what is known as a “lame-duck” session, since some of the Members will be “lame ducks” – not returning for the next session of Congress in January. By December 7, Congress will have to...
Encourage confidence to act