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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Webinars from the Field (Washington Update, December 19, 2018)
Create Your Crisis Communication Plan Wednesday, December 19, 1:00 pm ET Emergency Partners Information Connection (EPIC) program of the CDC Click https://zoom.us/j/336888256 to join the webinar or telephone: Dial (for higher quality, dial a number based on your...
The Courts (Washington Update, December 19, 2018)
Court Finds That the ACA Is Unconstitutional, But the Law is Still in Effect No doubt you have heard by now about the recent ruling in a case challenging the constitutionality of the Affordable Care Act (ACA), Texas v. United States (also known as Texas v. Azar). A...
Congress (Washington Update, December 19, 2018)
Congress and the president have not yet reached an agreement on funding for construction of a wall between the U.S. and Mexico, which the president is seeking. If they do not come to an agreement by December 21, there will be a partial government “shut-down” affecting...
Medicaid/CHIP News, Information, and Resources (Washington Update, December 19, 2018)
Proposed Changes to Medicaid Managed Care Rule Will Reduce Access to Providers (Blog of the Georgetown Center on Children and Families, 12/6/18) - short Inside the Trump Administration’s Proposed Medicaid Managed Care Rule (Health Affairs blog, 12/5/18) - long...
Affordable Care Act (Washington Update, December 19, 2018)
The annual open-enrollment season for the federal health insurance exchange (HealthCare.gov) ended on December 15. Some state exchanges are still open for enrollment, however – those in California, Colorado, Massachusetts, Minnesota, New York, Rhode Island, and...