Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

WEBINARS FROM THE FIELD (Washington Update, November 30, 2018)

Medicaid Managed Long-term Services and Supports Programs for Children and Youth with Special Health Care Needs Tuesday, December 4, 3:00-4:00 pm ET National Academy for State Health Policy Live webcast: Being Seriously Ill in the U.S.: Financial and Healthcare...

CONGRESS (Washington Update, November 30, 2018)

Outlook for the Rest of the Year A partial federal government “shut-down” is in the offing if Congress and the president have not reached an agreement on appropriations by the December 7 expiration date of a “continuing resolution” now funding seven federal...

AFFORDABLE CARE ACT (Washington Update, November 30, 2018)

REMEMBER: 2019 Open Enrollment runs from Nov. 1 through Dec. 15, 2018. Waivers Will Allow States to Alter ACA Rules On November 29, CMS provided details about specific ways that states can utilize new guidance on the ACA’s “Section 1332 Innovation Waivers,” now called...

TRICARE (Washington Update, November 30, 2018)

TRICARE Prime Versus TRICARE Select: Should You Change or Keep Your Plan? (TRICARE Benefits Update, 11/21/18) Don’t Delay, Federal Benefits Open Season Underway (TRICARE Benefits Update, 11/20/18) Two open seasons are underway until Dec. 10, 2018: The Federal Benefits...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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