Quick Links
Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Webinars from the Field (Washington Update, January 9, 2019)
NEW SERIES: Genetic Counselors in the Genomic Era –Public Health Genetics and Precision Medicine Roles Sponsored by the National Society of Genetic Counselors (NSGC) An Overview of Regional Genetics Networks: Wednesday, January 9, 12:00-1:30 pm ET Save the Dates:...
The “Shut-Down” (Washington Update, January 9, 2019)
Health Programs No doubt you have heard about the partial government “shut-down” caused by a stand-off between congressional Democrats and President Trump over whether to fund a “wall” that the president wants to erect on the nation’s southwest border to prevent...
Additional Special Enrollment Period Available for Victims of 2018 Hurricane Michael (from CMS) (Washington Update, January 9, 2019)
Note: This message is intended for Georgia and Florida assisters only The Centers for Medicare & Medicaid Services (CMS) is providing additional opportunities to enroll in Federally-facilitated Exchange (FFE) coverage for certain individuals affected by Hurricane...
Congress (Washington Update, January 9, 2019)
The New Congress The 116th Congress of the United States convened on January 3, 2019, and will exist for two years–divided into the first and second “sessions.” It is the most racially and ethnically diverse Congress in history, and the most female. Among the new...
The Courts (Washington Update, January 9, 2019)
Update on Texas v. Azar -- Challenge to the ACA As reported in the last Update, in December a federal district court held that the entire ACA is unconstitutional in Texas v. Azar (also known as Texas v. United States), a case brought by the attorneys-general in 20...
Encourage confidence to act