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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, December 19, 2018)
NEW: HHS Seeks Public Feedback on Modifying HIPAA Privacy Rules – Due Feb. 12 The Office of Civil Rights (OCR) of the Department of Health and Human Services (HHS) has published a Request for Information (RFI) asking the public for comments on how regulations...
Webinars from the Field (Washington Update, December 13, 2018)
The Impact of Medicaid Work Requirements on Family Caregivers and Older Adults Thursday, December 13, 1:00-2:00 pm ET Justice In Aging SERIES Implementation of the Federal Settings Criteria for Home and Community-based Services (HCBS) – last in series Thursday,...
The Courts (Washington Update, December 13, 2018)
A Court Ruling May Allow Migrant Families to Be Held Indefinitely. These Families Know What That Could Be Like. Migrant children are not supposed to be detained for more than 20 days in unlicensed facilities. Texas may be able to license two family detention centers,...
Congress (Washington Update, December 13, 2018)
A December 7 funding deadline was extended to December 21 but it is not clear whether Congress and the president will reach a deal by then to fund seven departments and a number of agencies for which final appropriations have not yet been made for the current fiscal...
Medicaid/CHIP News, Information, and Resources (Washington Update, December 13, 2018)
New Report Highlights Why Medicaid is Critical to America's Military Readiness (press release of the Children’s Hospital Association, 11/15/18). TRICARE for Kids, a coalition of military family and health advocacy groups, recently released a report, America's Military...
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