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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, January 9, 2019)
New National Center on Advancing Person-Centered Practices and Systems The Administration for Community Living and the Centers for Medicare & Medicaid Services recently announced the launch of the National Center on Advancing Person-Centered Practices and Systems...
Your Input Sought (Washington Update, January 9, 2019)
Comments to CMS about Proposed Rule on Medicaid/CHIP Managed Care – due Jan. 14, 2019 On November 8, the Centers for Medicare & Medicaid Services (CMS) issued a Notice of Proposed Rule Making (NPRM) (proposed rule) to amend the 2016 managed care final rule issued...
Resources for Open Enrollment (Washington Update, December 19, 2018)
Health insurance marketplaces are still open for enrollment in California, Colorado, Massachusetts, Minnesota, New York, Rhode Island, and Washington, DC. The following resources might be helpful to consumers. Health Insurance Marketplace Calculator This tool from the...
Webinars from the Field (Washington Update, December 19, 2018)
Create Your Crisis Communication Plan Wednesday, December 19, 1:00 pm ET Emergency Partners Information Connection (EPIC) program of the CDC Click https://zoom.us/j/336888256 to join the webinar or telephone: Dial (for higher quality, dial a number based on your...
The Courts (Washington Update, December 19, 2018)
Court Finds That the ACA Is Unconstitutional, But the Law is Still in Effect No doubt you have heard by now about the recent ruling in a case challenging the constitutionality of the Affordable Care Act (ACA), Texas v. United States (also known as Texas v. Azar). A...
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