Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update October 19, 2023

Both the Senate and House are in session this week… sort of. The House has been unable to elect a Speaker so much of their business is on hold. Read the full newsletter here

Washington Update October 13, 2023

Legislative UpdateShutdown was averted, but leadership of the House is not clear. Republican leaders of the House hope to vote a new Speaker of the House by the end of the week. For now, Representative McHenry (R. NC) is the “speaker pro tem.” This is temporary and he...

Washington Update October 6, 2023

Congress avoided a government shutdown last Saturday by passing a temporary 45-day continuing resolution until November 17, 2023. Congress Launches MCO Investigation: House Energy and Commerce Committee Ranking Member Frank Pallone, Jr. (D-NJ) and Senate Finance...

Washington Update September 27, 2023

All eyes, ears, and efforts in both chambers of Congress will be focused on the federal budget. It expires on 9/30/23- and agreement to pass appropriation bills and/or a temporary continuing resolution appear nowhere in sight. Read the full newsletter here

Community Code of Kindness

Family Voices is excited to share a new position statement that was created in collaboration with several other organizations. The organizations included in this statement helped to create and adopt the attached collaborative interactions for our national...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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