Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Your Input Sought (Washington Update, January 9, 2019)

Comments to CMS about Proposed Rule on Medicaid/CHIP Managed Care – due Jan. 14, 2019 On November 8, the Centers for Medicare & Medicaid Services (CMS) issued a Notice of Proposed Rule Making (NPRM) (proposed rule) to amend the 2016 managed care final rule issued...

Resources for Open Enrollment (Washington Update, December 19, 2018)

Health insurance marketplaces are still open for enrollment in California, Colorado, Massachusetts, Minnesota, New York, Rhode Island, and Washington, DC. The following resources might be helpful to consumers. Health Insurance Marketplace Calculator This tool from the...

Webinars from the Field (Washington Update, December 19, 2018)

Create Your Crisis Communication Plan Wednesday, December 19, 1:00 pm ET Emergency Partners Information Connection (EPIC) program of the CDC Click https://zoom.us/j/336888256 to join the webinar or telephone: Dial (for higher quality, dial a number based on your...

The Courts (Washington Update, December 19, 2018)

Court Finds That the ACA Is Unconstitutional, But the Law is Still in Effect No doubt you have heard by now about the recent ruling in a case challenging the constitutionality of the Affordable Care Act (ACA), Texas v. United States (also known as Texas v. Azar). A...

Congress (Washington Update, December 19, 2018)

Congress and the president have not yet reached an agreement on funding for construction of a wall between the U.S. and Mexico, which the president is seeking. If they do not come to an agreement by December 21, there will be a partial government “shut-down” affecting...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of