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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid/CHIP News, Information, and Resources (January 19, 2019)
Medicaid’s Future Last week, the publication Politico reported that the administration is exploring how it might be able to implement some sort of “block grant” concept in Medicaid without legislation. See Trump Wants to Bypass Congress on Medicaid Plan - Block Grants...
Affordable Care Act and TRICARE (Washington Update, January 19, 2019)
AFFORDABLE CARE ACT The annual open-enrollment season for the federal health insurance exchange (HealthCare.gov) ended on December 15. Some state exchanges are still open for enrollment. TRICARE Government Shutdown: Some Allotment Payments Affected The partial...
Other News, Information, and Resources (Washington Update, January 19, 2019)
Consideration of Pain in Adult and Child Disability Claims The Office of Disability Policy of the Social Security Administration (SSA) is requesting public comments about the consideration and documentation of pain in the medical evidence used in connection with...
Your Input Sought/Of Possible Interest (Washington Update, January 17, 2019)
Your Input Sought NEW Consideration of pain in adult and child disability claims – Due February 15, 2019 The Office of Disability Policy, Social Security Administration (SSA) has issued an Advance Notice of Proposed Rulemaking (ANPRM) to solicit public comments and...
Webinars from the Field (Washington Update, January 9, 2019)
NEW SERIES: Genetic Counselors in the Genomic Era –Public Health Genetics and Precision Medicine Roles Sponsored by the National Society of Genetic Counselors (NSGC) An Overview of Regional Genetics Networks: Wednesday, January 9, 12:00-1:30 pm ET Save the Dates:...
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