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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, January 19, 2019)
Consideration of Pain in Adult and Child Disability Claims The Office of Disability Policy of the Social Security Administration (SSA) is requesting public comments about the consideration and documentation of pain in the medical evidence used in connection with...
Your Input Sought/Of Possible Interest (Washington Update, January 17, 2019)
Your Input Sought NEW Consideration of pain in adult and child disability claims – Due February 15, 2019 The Office of Disability Policy, Social Security Administration (SSA) has issued an Advance Notice of Proposed Rulemaking (ANPRM) to solicit public comments and...
Webinars from the Field (Washington Update, January 9, 2019)
NEW SERIES: Genetic Counselors in the Genomic Era –Public Health Genetics and Precision Medicine Roles Sponsored by the National Society of Genetic Counselors (NSGC) An Overview of Regional Genetics Networks: Wednesday, January 9, 12:00-1:30 pm ET Save the Dates:...
The “Shut-Down” (Washington Update, January 9, 2019)
Health Programs No doubt you have heard about the partial government “shut-down” caused by a stand-off between congressional Democrats and President Trump over whether to fund a “wall” that the president wants to erect on the nation’s southwest border to prevent...
Additional Special Enrollment Period Available for Victims of 2018 Hurricane Michael (from CMS) (Washington Update, January 9, 2019)
Note: This message is intended for Georgia and Florida assisters only The Centers for Medicare & Medicaid Services (CMS) is providing additional opportunities to enroll in Federally-facilitated Exchange (FFE) coverage for certain individuals affected by Hurricane...
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