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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, January 30, 2019)
YOUR INPUT SOUGHT NEW Pain Management Task Force Draft Report – Due April 1, 2019 The Comprehensive Addiction and Recovery Act of 2016 (CARA), requires that the public be given at least ninety (90) days to submit comments on any proposed updates and recommendations...
Webinars from the Field (Washington Update, January 19, 2019)
Integrating Nurses into Complex Care Teams Thursday, January 17, 1:00 pm ET Better Care Playbook NEW CLC Peer Learning Exchange: Building Health Equity in Systems of Care by Engaging Diverse Families, Youth, and Community Organizations Thursday, January 17, 2:00-3:00...
The “Shut-Down” (Washington Update, January 19, 2019)
As most readers probably know, a partial government “shut-down” has been caused by a stand-off between congressional Democrats and President Trump over whether to fund a “wall” on the nation’s southern border. At this point, it is not clear how or when the situation...
Maternal and Child Health Bureau Announces Phase 1 Winners of the Challenge
Maternal and Child Health Bureau Announces Phase 1 Winners of the Challenge The Maternal and Child Health Bureau has selected 7 winners from Phase 1 of the Care Coordination for Children with Special Health Care Needs Challenge. Each Phase 1 winner was awarded a share...
Congress (Washington Update, January 19, 2019)
The New Congress For information about the new Congress, see last week’s Update. WORTH REPEATING: Connecting With New and Returning Members of Congress The beginning of a new Congress presents a great opportunity to establish contact with new Representatives and...
Encourage confidence to act