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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
The “Shut-Down” (Washington Update, January 19, 2019)
As most readers probably know, a partial government “shut-down” has been caused by a stand-off between congressional Democrats and President Trump over whether to fund a “wall” on the nation’s southern border. At this point, it is not clear how or when the situation...
Maternal and Child Health Bureau Announces Phase 1 Winners of the Challenge
Maternal and Child Health Bureau Announces Phase 1 Winners of the Challenge The Maternal and Child Health Bureau has selected 7 winners from Phase 1 of the Care Coordination for Children with Special Health Care Needs Challenge. Each Phase 1 winner was awarded a share...
Congress (Washington Update, January 19, 2019)
The New Congress For information about the new Congress, see last week’s Update. WORTH REPEATING: Connecting With New and Returning Members of Congress The beginning of a new Congress presents a great opportunity to establish contact with new Representatives and...
Medicaid/CHIP News, Information, and Resources (January 19, 2019)
Medicaid’s Future Last week, the publication Politico reported that the administration is exploring how it might be able to implement some sort of “block grant” concept in Medicaid without legislation. See Trump Wants to Bypass Congress on Medicaid Plan - Block Grants...
Affordable Care Act and TRICARE (Washington Update, January 19, 2019)
AFFORDABLE CARE ACT The annual open-enrollment season for the federal health insurance exchange (HealthCare.gov) ended on December 15. Some state exchanges are still open for enrollment. TRICARE Government Shutdown: Some Allotment Payments Affected The partial...
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