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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
THE COURTS (Washington Update, February 20, 2019)
Federal Court Agrees to Let Democrats Defend Obamacare in Court (The Hill, 2/14/19) As reported in earlier Washington Updates, a federal district court in Texas ruled, in Texas v. Azar, that the entire Affordable Care Act (ACA) is unconstitutional, as claimed by the...
CONGRESS (Washington Update, February 20, 2019)
ACE Kids Act Introduced in the House and Senate During the last Congress, the Advancing Care for Exceptional Kids Act (ACE Kids Act) was passed by the House as part of a larger bill, but did not make it to the Senate. Since it is a new Congress, all legislation must...
MEDICAID/CHIP NEWS, INFORMATION, AND RESOURCES (February 20, 2019)
MEDICAID WAIVERS Updated 1915(c) Waiver Application On January 28, 2019, CMS released a revised application and technical guide for Medicaid 1915(c) waivers, used to provide home-and community based services. According to this information provided by the National...
TRICARE (Washington Update, February 20, 2019)
Understanding Your TRICARE Explanation of Benefits (Benefit Update, 2/19/19) WORTH REPEATING: Final Rule on Exceptional Family Member Program (EFMP) On February 13, the Department of Defense (DoD) issued a final rule (PDF) about the Exceptional Family Member Program...
OTHER NEWS, INFORMATION, AND RESOURCES (Washington Update, February 20, 2019)
From the Agencies: From the Department of Education: FERPA and school security On February 5, the Department of Education’s Privacy Technical Assistance Center (PTAC) released a publication, School Resource Officers, School Law Enforcement Units, and the Family...
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