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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
The “Shut-Down” (Washington Update, January 30, 2019)
No doubt you have heard that the partial government “shut-down” has been ended until at least February 15 in order to allow time for Congress and President Trump to negotiate over funding for a “wall” on the nation’s southwest border. Fortunately, this means that...
The Administration (Washington Update, January 30, 2019)
New Federal Policy on Restraint and Seclusion in Schools On January 17, Secretary of Education Betsy DeVos announced a new department initiative to address the problem of restraint and seclusion of school children with disabilities. See U.S. Department of Education...
Congress (Washington Update, January 30, 2019)
Money-Follows-The-Person (MFP) Program Extended Temporarily On January 25, the president signed the Medicaid Extenders Act of 2019 (H.R. 259), which was approved in the Senate by unanimous consent on January 17. The Act provides $112 million for Money Follows the...
The Courts (Washington Update, January 30, 2019)
Kentucky residents have filed a lawsuit challenging the administration’s re-approval of a Medicaid waiver that would establish “community engagement” requirements for certain Medicaid beneficiaries. Eligibility for these individuals would be contingent on their...
Medicaid/CHIP News, Information, and Resources (Washington Update, January 30, 2019)
MEDICAID WAIVERS CMS Approves Arizona’s Medicaid Community Engagement Demonstration Amendment (CMS press release, 1/18/19). See CMS approves 8th state for Medicaid work requirement (Healthcare Dive, 1/22/19). WORTH REPEATING: Tennessee proposes to amend its...
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