Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Medicaid News and Resources (Washington Update, February 14, 2019)

Medicaid Waivers Utah GOP Shrinks Medicaid Expansion, Defying Voters The Republican governor signed a bill curbing Obamacare's Medicaid expansion, months after voters approved the program. (Politico, 02/11/2019). REMINDER: Approved and pending Medicaid waiver...

TRICARE (Washington Update, February 14, 2019)

Final Rule on Exceptional Family Member Program (EFMP) On February 13, the Department of Defense (DoD) issued a final rule (PDF) about the Exceptional Family Member Program (EFMP), which was created to enhance and improve DoD support around the world for military...

Webinars from the Field (Washington Update, January 30, 2019)

Building Capacity to Include People Who Have Disabilities Wednesday, January 30, 12:00-1:00 pm ET Association of University Centers on Disabilities Successfully Engaging Members in Plan Governance Wednesday, January 30, 12:30-2:00 pm ET Centers for Medicare and...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of