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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, February 27, 2019)
YOUR INPUT SOUGHT NEW FEMA National Advisory Council – Due March 15, 2019 The Federal Emergency Management Agency (FEMA) is accepting applications until March 15, 2019, for 12 open positions on its National Advisory Council. They are seeking one person to fill the...
WEBINARS FROM THE FIELD (Washington Update, February 20, 2019)
SERIES: Pain Medication Education Christopher and Dana Reeve Foundation Part 2: Understanding Opioids and Opioid Addiction: Wednesday, February 20, 12:00-1:00 pm ET Part 3: What are my options for tapering opioids? Wednesday, March 13, 12:00-1:00 pm ET Past -- Part 1:...
THE COURTS (Washington Update, February 20, 2019)
Federal Court Agrees to Let Democrats Defend Obamacare in Court (The Hill, 2/14/19) As reported in earlier Washington Updates, a federal district court in Texas ruled, in Texas v. Azar, that the entire Affordable Care Act (ACA) is unconstitutional, as claimed by the...
CONGRESS (Washington Update, February 20, 2019)
ACE Kids Act Introduced in the House and Senate During the last Congress, the Advancing Care for Exceptional Kids Act (ACE Kids Act) was passed by the House as part of a larger bill, but did not make it to the Senate. Since it is a new Congress, all legislation must...
MEDICAID/CHIP NEWS, INFORMATION, AND RESOURCES (February 20, 2019)
MEDICAID WAIVERS Updated 1915(c) Waiver Application On January 28, 2019, CMS released a revised application and technical guide for Medicaid 1915(c) waivers, used to provide home-and community based services. According to this information provided by the National...
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