Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update October 13, 2023

Legislative UpdateShutdown was averted, but leadership of the House is not clear. Republican leaders of the House hope to vote a new Speaker of the House by the end of the week. For now, Representative McHenry (R. NC) is the “speaker pro tem.” This is temporary and he...

Washington Update October 6, 2023

Congress avoided a government shutdown last Saturday by passing a temporary 45-day continuing resolution until November 17, 2023. Congress Launches MCO Investigation: House Energy and Commerce Committee Ranking Member Frank Pallone, Jr. (D-NJ) and Senate Finance...

Washington Update September 27, 2023

All eyes, ears, and efforts in both chambers of Congress will be focused on the federal budget. It expires on 9/30/23- and agreement to pass appropriation bills and/or a temporary continuing resolution appear nowhere in sight. Read the full newsletter here

Community Code of Kindness

Family Voices is excited to share a new position statement that was created in collaboration with several other organizations. The organizations included in this statement helped to create and adopt the attached collaborative interactions for our national...

Washington Update September 21, 2023

The September 30th deadline for passing a budget is looming, and no agreement is in sight. This memo gives an overview of what HHS programs would be affected by a government shutdown. Those with mandatory funding, such as the F2Fs, would not be affected. Read the full...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of