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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Webinars from the Field (Washington Update, March 6, 2019)
SERIES: Pain Medication Education Christopher and Dana Reeve Foundation Part 3: What Are My Options for Tapering Opioids? Wednesday, March 13, 12:00-1:00 pm ET Past -- Part 1: "What is my pain medication?" Video; Info. Past -- Part 2: Understanding Opioids and Opioid...
CONGRESS (Washington Update, March 6, 2019)
“Medicare-for-All” Bill Introduced On February 28, Representatives Pramila Jayapal (D-WA) and Debbie Dingell (D-MI), joined by another 105 Democrats, introduced the Medicare for All Act of 2019 (H.R. 1384). The bill would expand the Medicare program to cover all U.S....
Medicaid/Affordable Care Act/TRICARE News (Washington Update, March 6, 2019)
MEDICAID RESOURCES REMINDER: Approved and pending Medicaid waiver applications can be found on gov. The Kaiser Family Foundation regularly updates its state-by-state §1115 Medicaid Waiver Tracker, and also provides related waiver resources and definitions. AFFORDABLE...
Other News, Information, and Resources (Washington Update, March 6, 2019)
News CMS Updates Consumer Resources for Comparing Hospital Quality (Excerpts from a CMS press announcement, 2/28/19) The Centers for Medicare & Medicaid Services (CMS) has updated hospital performance data on the Hospital Compare website and on data.medicare.gov....
Your Input Sought/Of Possible Interest (Washington Update, March 6, 2019)
YOUR INPUT SOUGHT NEW FEMA National Advisory Council – Due March 15, 2019 The Federal Emergency Management Agency (FEMA) is accepting applications until March 15, 2019, for 12 open positions on its National Advisory Council. They are seeking one person to fill the...
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