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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Bipartisan House and Senate Bills Introduced to Extend F2F Funding
Representatives Mikie (Michelle) Sherrill (D-NJ) and Fred Upton (R-MI) introduced the Family-to-Family Reauthorization Act of 2019 (H.R. 2822), which will extend funding for Family-to-Family Health Information Centers (F2Fs) for an additional five years, through...
Webinars from the Field (Washington Update, April 3, 2019)
Disparities in Genetic Services & Privacy Tuesday, April 9, 12:00-1:00 pm ET National Society of Genetic Counselors The InCK (Federal Integrated Care for Kids) Model and Prevention Tuesday, April 9, 2:00-3:15 pm ET InCK Marks Network Pursuing Health Equity: Start...
The Courts (Washington Update, April 3, 2019)
In the past couple weeks, there have been significant developments in the healthcare legal sphere. One federal district court invalidated the administration’s approval of waivers that would have permitted Kentucky and Arkansas to establish Medicaid work requirements....
Congress (Washington Update, April 3, 2019)
House-Passed Medicaid Bill Includes ACE Kids Act; Additional MFP Funds On March 25, the House passed the Medicaid Services Investment and Accountability Act of 2019 (H.R.1839). The bill, which has been transmitted to the Senate, includes an updated version of the ACE...
Medicaid News, Information, and Resources (Washington Update, April 3, 2019)
New Guidance on HCBS Settings Rule As explained in a March 22 press release, the Centers for Medicare and Medicaid Services (CMS) has issued updated guidance to State Medicaid Directors on implementation of the 2014 Home and Community Based Services (HCBS) regulation....
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