Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update October 3, 2019

Not a lot happened during the past week in Washington…with respect to health care, that is.  The president signed the Autism CARES Act but, otherwise, policymakers and politicos have been preoccupied with other matters (i.e., the impeachment inquiry), which may...

Washington Update September 25, 2019

The big news from last week: Congress has passed the Autism CARES Act, and it is expected to be signed by the president. More good news: the US Customs and Immigration Services has decided to continue processing medical “deferred action” requests, which will make it...

Call for Nominations – Family Voices Board of Directors

Family Voices is seeking nominations for the Family Voices Board of Directors election. There are openings for 3 or 4 new Directors. We particularly seek candidates who bring perspectives of diverse communities, family leaders, and/or legal, financial or fundraising...

Washington Update September 18, 2019

Congress came back from its August recess last week and is working to develop legislation on surprise medical bills and prescription drug prices, among other things. While the Washington Update was on recess, the administration issued its final rule on the “public...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of