Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update, November 20, 2019

Congress is still working away on FY 2020 appropriations, and legislation to address surprise medical billing and prescription drug prices. Meanwhile, the Centers for Medicare and Medicaid Services (CMS) has been very busy. The agency released a significant proposed...

Washington Update, October 31, 2019

Not all cooperation between the political parties has ceased in DC. During recent days, the House passed five health bills applauded by both Democrats and Republicans. These bills address the pediatric health care workforce, the nursing workforce, and palliative care....

Washington Update, October 24, 2019

Not a whole lot is new on the health front this week, except that the Centers for Medicare and Medicaid Services (CMS) released data showing that health insurance premiums have come down and the number of health plan choices has gone up. (See the ACA section, below.)...

Washington Update, October 17, 2019

Congress returned from a two-week recess on October 15. It now must develop and pass appropriations to keep the government funded past November 21. Still under consideration is legislation to address surprise medical bills and prescription drug costs, although it is...

Washington Update, October 9, 2019

Congress is still in recess, and will return on October 15. Outstanding issues to tackle when they get back include appropriations to keep the government funded past November 21, and legislation to address surprise medical bills and prescription drug costs. It is not...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of