Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update September 18, 2019

Congress came back from its August recess last week and is working to develop legislation on surprise medical bills and prescription drug prices, among other things. While the Washington Update was on recess, the administration issued its final rule on the “public...

Washington Update, August 9, 2019

SPECIAL BULLETIN:  The 5-year funding extension for Family-to-Family Health Information Centers is now law! Greetings from Washington! GREAT NEWS! The president has signed the bill that extends funding for Family-to-Family Health Information Centers (F2Fs) for five...

Washington Update, August 1, 2019

GOOD NEWS! Congress has passed legislation to extend funding for Family-to-Family Health Information Centers (F2Fs) for five more years (through FY 2024) at the current funding level of $6 million per year! The legislation also makes permanent the provision that...

House and Senate Pass Bill to Extend F2F Funding

UPDATE (July 31, 2019):  The House and Senate have both passed a bill to fund Family-to-Family Health Information Centers (F2Fs) for FIVE more years – through FY 2024 – at the current funding level of $6 million per year!  The legislation also makes permanent the...

Washington Update, July 25, 2019

There is a lot going on in Congress right now, as Members try to get things done before they leave DC for the annual August recess. Speaking of which…Time to meet with your Members of Congress at home! Read more in this issue!

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of