Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update, April 10, 2020

Once again, the policy world is all about the coronavirus – what laws and regulatory changes are needed to help individuals, health care providers, states, and businesses in this novel and extremely challenging environment. Keep reading for news and resources.

Washington Update, March 27, 2020

It won’t be a surprise that this issue of the Update is devoted to the coronavirus pandemic. As of this writing, two federal coronavirus-related bills have been enacted, and a third is (hopefully) close to enactment. It is expected that there will be more legislation...

Washington Update, March 13, 2020

Greetings from Washington, DC! This issue of the Update is devoted in large part to coronavirus-related policy and information, including information about insurance coverage for testing and treatment for COVID-19, the illness that results from the virus. Top line...

CANCELLED: March 21, 2020 Family Engagement Convening

After much careful thought and consultation about the coronavirus pandemic, Family Voices has decided to cancel the Family Engagement Convening, scheduled for March 21 in the Washington DC area. Participants will receive a full refund of their registration fee as soon...

Washington Update, March 5, 2020

In the Update this week: The Supreme Court has decided that it will hear oral arguments in the ACA case during next year’s term, which begins in October 2020. A decision is not likely to be rendered until the following spring. The novel coronavirus of 2019 is taking...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of