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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
Find help in your community
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Family Voices Affiliate Organizations (FVAOs)
What are Family Voices Affiliate Organizations?
A Family Voices Affiliate Organization (FVAO) is a statewide/territory-wide/tribal, parent/family-led non-profit organization, with a Board composed of a majority of family members of CYSHCN, that meets the requirements of an FVAO and works to advance the mission, vision, and principles of Family Voices. FVAOs are a critical part of our collective effort to keep families at the center of children’s health care.
There is an FVAO in most states, and only one FVAO is approved per state. In many cases, the FVAO is the same organization that serves as the Family-to-Family Health Information Center (F2F) in that state, though not in all cases.
FVAOs stay connected through a listserv, national meetings, monthly national calls, and quarterly regional calls. The affiliate network works with the Family Voices policy team to inform our policy work and take collective action.
If your organization is interested in becoming a Family Voices affiliate, please contact Ian Whitney for more information and an application.
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Family-to-Family Health Information Centers (F2Fs)
What are F2Fs?
Family-to-Family Health Information Centers (F2Fs) are family-led organizations that support families of children and youth with special health care needs (CYSHCN). Family Voices provides technical assistance to the F2Fs through the Family Engagement and Leadership in Systems of Care grant, funded through 2028 through the Health Resources and Services Administration (HRSA) Maternal Child Health Bureau.
The Maternal and Child Health Bureau (MCHB) funds F2Fs in every state, the District of Columbia, five US territories, and three F2Fs serving American Indians and Alaska Natives.
Each F2F is staffed by highly skilled, knowledgeable families with first-hand experience of the challenges faced by CYSHCN and their families. These uniquely qualified staff provide critical support to families caring for CYSHCN, particularly families of children with complex needs and those from communities that experience worse outcomes.
F2Fs also help healthcare providers, state and federal agencies, and legislators understand and respond to the needs of CYSHCN and their families.
Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)
F2Fs and FVAOs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
At-home covid tests and omicron: What you need to know
As millions of Americans scramble to navigate life disrupted by the easily transmissible omicron variant, public officials are urging them to view at-home antigen tests as an important tool to stem the surge in coronavirus cases and hospitalizations. (Washington Post)...
CDC Recommends Pfizer Booster at 5 Months, Additional Primary Dose for Certain Immunocompromised Children
Today, CDC is updating our recommendation for when many people can receive a booster shot, shortening the interval from 6 months to 5 months for people who received the Pfizer-BioNTech COVID-19 Vaccine. This means that people can now receive an mRNA booster shot 5...
COVID: Ómicron se multiplica en los bronquios 70 veces más rápido que Delta (El Diario NY)
Científicos chinos encontraron que la velocidad con que la variante Ómicron se reproduce en el tejido bronquial supera a las otras variantes conocidas hasta hoy, pero no se comporta igual en los pulmones. Leer más aquí.
Washington Update December 14, 2021
This week in Washington, Congress will be tied up with the National Defense Authorization Act and voting to raise the debt ceiling - among many other things. Build Back Better (BBB) is…still being built. Many steps in the building process still remain to be completed....
Webinar: Evaluation TA for F2F Proposals
Join Family Voices Leadership in Family and Professional Partnerships (LFPP) on Thursday, Dec. 16 from 1:30 - 3pm ET. LFPP’s external evaluators at the Institute for Community Health (ICH) will provide a brief overview on general program evaluation practices and then...