Quick Links
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update December 15 2020
The big issues in DC right now are: FDA authorization for emergency use of coronavirus vaccines – On Thursday, an FDA advisory committee recommended that the FDA grant “emergency use authorization” (EUA) of the vaccine developed by Pfizer for individuals age 16 and...
Washington Update, October 30, 2020
Greetings from Washington, DC In this Update: The administration has issued an interim final rule weakening the “Maintenance of Effort” requirement that states must meet to receive an enhanced Medicaid match during the COVID Public Health Emergency. States may now...
New! Family Voices Telehealth Checklist & Worksheet
The year 2020 has changed many things, and how we operate in the world around us. One of the biggest changes, has been in the area of healthcare, and the shift to more services being delivered through telehealth or telemedicine. Families across the country have had to...
Washington Update, October 21, 2020
Greetings from Washington, DC In this Update: The prospects for legislation to address the pandemic’s financial impact are very dim. The Senate is expected to vote on Monday to confirm Judge Amy Coney Barrett to the Supreme Court. The Maternal and Child Health Bureau...
Shared Decision Making Worksheet for COVID-19 Prevention
Shared Decision Making (SDM) is highlighted as being critical to navigating COVID-19 together with families and providers by the American Academy of Pediatrics (AAP), interim guidance, Caring for Children and Youth With Special Health Care Needs During the COVID-19...
Encourage confidence to act