Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update March 3, 2021

The major issues covered in this Update are: The COVID-relief bill  Information about the availability (or lack of availability) for non-elderly individuals with disabilities and their caretakers (including the Issue Brief: COVID-19 Vaccine Access for [Non-Elderly]...

Washington Update February 22, 2021

The major issues covered in this Update are: The COVID-relief bill New CDC guidelines on school reopening New CDC guidance on masks Withdrawal of public charge rule Rescission of Medicaid work-requirement waivers and guidance Vaccination and mask updates (end section)...

Washington Update February 2, 2021

The major issues covered in this Update are: New ACA Special Enrollment Period on healthcare.gov, February 13 through May 15 Presidential order to identify and address policies hindering access to health care coverage Efforts to pass another COVID-relief bill Report...

Family Voices CARES Act Telehealth Curricula Launch!

January 27 | 3:00-4:00 EST Register Today! During this session, Family Voices will share details about The Fab 4 for a Family-Centered Telemedicine Appointment curriculum, which includes prerecorded webinars, customizable PowerPoints with speaker notes, and more...

Call for YSC applications

We are excited to share a youth engagement opportunity with the new National Health Care Transition Resource Center for Youth and Young Adults with Intellectual and Developmental Disabilities. About the National Health Care Transition Resource Center (NHCTRC) The...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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