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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Shared Decision Making Worksheet for COVID-19 Prevention
Shared Decision Making (SDM) is highlighted as being critical to navigating COVID-19 together with families and providers by the American Academy of Pediatrics (AAP), interim guidance, Caring for Children and Youth With Special Health Care Needs During the COVID-19...
Washington Update, October 9, 2020
The prospects for legislation to address the pandemic’s financial impact are very unclear at the moment, but it is still within the realm of possibility that an agreement will be reached before the election. Hearings begin next week on the nomination of Judge Amy...
Washington Update, September 22, 2020
Both houses of Congress are back in session after their August break, but have made no progress on another pandemic-relief bill. As of this writing, it seems unlikely, but not impossible, that a bill will be passed before the election. In other news… Medicaid...
ACTION NEEDED ON PANDEMIC RELIEF!
A national call-in day has been organized by the Coalition on Human Needs and other organizations. Please read below and take action TODAY. COVID-19 Senate Call-In Day – TODAY (Wed.) At the moment, Congress seems unlikely to provide additional relief to those...
Announcing: Family Voices United to End Racism against CYSHCN and Families
Following its Black Lives Matter Statement of Solidarity, Family Voices, a network of 59 family-led Family-to-Family Health Information Centers across the United States and its territories, has launched an 18-month project to address and dismantle racism in the health...
Encourage confidence to act