Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update March 3, 2021

The major issues covered in this Update are: The COVID-relief bill  Information about the availability (or lack of availability) for non-elderly individuals with disabilities and their caretakers (including the Issue Brief: COVID-19 Vaccine Access for [Non-Elderly]...

Washington Update February 22, 2021

The major issues covered in this Update are: The COVID-relief bill New CDC guidelines on school reopening New CDC guidance on masks Withdrawal of public charge rule Rescission of Medicaid work-requirement waivers and guidance Vaccination and mask updates (end section)...

Washington Update February 2, 2021

The major issues covered in this Update are: New ACA Special Enrollment Period on healthcare.gov, February 13 through May 15 Presidential order to identify and address policies hindering access to health care coverage Efforts to pass another COVID-relief bill Report...

Family Voices CARES Act Telehealth Curricula Launch!

January 27 | 3:00-4:00 EST Register Today! During this session, Family Voices will share details about The Fab 4 for a Family-Centered Telemedicine Appointment curriculum, which includes prerecorded webinars, customizable PowerPoints with speaker notes, and more...

Call for YSC applications

We are excited to share a youth engagement opportunity with the new National Health Care Transition Resource Center for Youth and Young Adults with Intellectual and Developmental Disabilities. About the National Health Care Transition Resource Center (NHCTRC) The...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of