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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update September 8, 2021
Welcome to the Fall of 2021 where much of the focus in Washington will be on reconciliation. If you recall, Democratic senators agreed to a $3.5 trillion reconciliation bill prior to the August Recess. Now begins the real work: what will be included. It is a massive...
Vaccinating During Pregnancy Has Become Even More Urgent As ICU Beds Fill Up
From NPR, All Things Considered: The Centers for Disease Control and Prevention is doubling down on its recommendation that people who are pregnant get the COVID-19 vaccine following new data underscoring its safety and effectiveness throughout pregnancy. This...
To Stoke Rural Vaccination Rates, Trusted Farmers Are Asked to Spread Word
From Kaiser Health News (republished with permission) Christine Herman, WILL / Illinois Public Media August 19, 2021 When he became eligible for the coronavirus vaccine in Illinois, Tom Arnold, 68, said he didn’t need any convincing. He raises cattle, hogs and...
As Delta spread, Covid-19 vaccine effectiveness against infection fell from 90% to 66% in one key study
From STAT news, 8/24/21: The effectiveness of Covid-19 vaccines at preventing infection fell in one study of U.S. frontline workers from roughly 90% to 66% as the Delta variant emerged and became dominant in the country, an updated report from the Centers for Disease...
Building Capacity in the African American ASD Community for Patient-Centered Outcomes Research
Family Voices is excited to announce that we have been awarded a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award, for a groundbreaking project, titled “Building Capacity in the African American ASD Community for...
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