Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

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About Family Voices

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Our Team

Diversity, equity, inclusion, and belonging.

Our DEIB Framework

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update September 9, 2022

Sep 9, 2022

The Senate is back in session this week and the House reconvenes next Tuesday after the August recess. There is a lot of legislative business at hand, and many members have already turned their focus to the November election. Read the full newsletter here

Washington Update July 28, 2022

Jul 28, 2022

Time is running short for legislators to accomplish their goals prior to the August recess… just this week and next. Members are prioritizing items and leaving others until after Labor Day. Note: the Washington Update will also be on recess until after Labor Day. Read...

Washington Update July 20, 2022

Jul 20, 2022

ReconciliationWhat a difference a week makes. Senate Democrats are zeroing in on a health-focused reconciliation effort after Sen. Joe Manchin (D-WV) expressed opposition to climate and tax-related policies within the filibuster-proof bill. It sounds as though the...

Washington Update July 13, 2022

Jul 13, 2022

Congress returns this week for the sprint between Independence Day and August Recess, in which the House and Senate both try to crank through legislative “to-do lists” before the late summer break. Read the full newsletter here

Washington Update June 24, 2022

Jun 24, 2022

Weekly updates from the policy arena for family leaders and professionals about CYSHCN. Read the full newsletter here

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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