Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

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About Family Voices

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Our Team

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update November 21, 2022

Nov 21, 2022

Both houses of Congress returned this week to kick off a busy "lame duck" session to close out the 117th Congress. The date to watch, other than the end of the year, is December 16th, when government funding is set to expire. What is a lame duck session? This is the...

Washington Update October 31, 2022

Oct 31, 2022

Both chambers of Congress will return to Washington after the November 8 midterm elections. The next votes in the House and Senate are scheduled to occur during the week of November 14. Read the full newsletter here

Washington Update October 12, 2022

Oct 12, 2022

The senate is in session this week and focused on the National Defense Authorization Act (NDAA). Usually, there are not standalone defense-related bills each year, so everything is tacked onto this one… and this is why staffers will spend this week sorting through the...

Washington Update September 23, 2022

Sep 23, 2022

Both chambers are back in session this week, and there are just 3 weeks left to avert a government shutdown. A temporary spending bill to keep the government funded until mid-December is still expected this week. Read the full newsletter here

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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