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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Informational Bulletin on Medicaid Home and Community-based Services
As announced on June 28, the Centers for Medicare & Medicaid Services (CMS) released an Informational Bulletin on ensuring the health and welfare of individuals receiving Medicaid-funded Home and Community Based Services (HCBS). The Centers for Medicaid & CHIP...
CMS Rejects Massachusetts Request to Restrict Medicaid Drug Formulary
The Massachusetts Medicaid program asked the Centers for Medicare and Medicaid Services (CMS) to waive several different requirements of Medicaid law pursuant to the federal government’s waiver authority granted in section 1115 of the Social Security Act. Among the...
Of Possible Interest: 7/3/2018
Teaching Parents of Kids with Disabilities to Fight Back (NPR, 6/29/18, text and audio) – story about the Partners in Policymaking program.
Family Voices Policy Position on Separating Families
Family Voices has released a policy statement in regard to the practice of separating immigrant families.
Greetings from Washington: Washington Update, June 27, 2018 Summary
The big issue in DC is still the separation of immigrant children from their families at the southwest US border, or more precisely, how to reunite them. In order to gain sufficient support for ways to address this and other immigration issues, the House has postponed...
Encourage confidence to act