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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought
Traveling by Air with Service Animals [corrected from May 31 Update.] Comments due July 9 On May 23, the Department of Transportation (DOT) published an Advanced Notice of Proposed Rulemaking (ANPRM) regarding regulations of service animals under the Air Carrier...
Other News, Information, and Resources
FDA Approves Epilepsy Drug Derived from Marijuana On Monday, June 25, the Food and Drug Administration (FDA) announced the approval of a purified form of the drug cannabidiol (CBD). The new product, called Epidiolex, was approved to treat seizures in patients two...
Affordable Care Act News and Resources: Navigator Grants Uncertain
As of June 20, the administration had not yet provided any information to about future funding to the groups that have been serving as ACA “navigators.” See Key ObamaCare groups in limbo as they await funding (The Hill, 6/20/28). Navigators assist consumers in...
Medicaid/CHIP News: Guidance on Providing EPSDT Services for Children in “Institutions for Mental Disease” (IMDs)
On June 20, the Centers for Medicare & Medicaid Services (CMS) released an Informational Bulletin that describes the requirements of section 12005 of the 21st Century Cures Act (the Cures Act) -- “Providing EPSDT Services to Children in IMDs.” This section of the...
Budget and Appropriations
Rescissions As reported in last week’s Update, the Senate voted not to take up the bill that would have rescinded funds previously designated for the Children’s Health Insurance Program (CHIP) and other programs. Because the legislation was subject to a deadline of...
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