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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Congress: FY 2019 Appropriations
Update: The Senate Appropriations Subcommittee on Labor, HHS, and Education approved its version of the bill to fund those agencies in FY 2019, and the full committee approved the bill the next day. (See the committee report.) As reported in last week’s Update, the...
CMS Guidance on Medicaid Coverage of Drugs Approved by the FDA under Its “Accelerated Approval Pathway”
On June 27, the Centers for Medicare & Medicaid Services (CMS), Center for Medicaid and CHIP Services (CMCS) released guidance to states through State Release #185, titled State Medicaid Coverage of Drugs Approved by the FDA under Accelerated Approval Pathway. The...
CMS announces initiatives to strengthen Medicaid program integrity
On June 26, CMS announced ways that it would seek to strengthen program integrity. See CMS Launches Slate of Initiatives Aimed at Curbing Fraud, Waste in Medicaid (FierceHealthcare, 6/26/18).
Informational Bulletin on Medicaid Home and Community-based Services
As announced on June 28, the Centers for Medicare & Medicaid Services (CMS) released an Informational Bulletin on ensuring the health and welfare of individuals receiving Medicaid-funded Home and Community Based Services (HCBS). The Centers for Medicaid & CHIP...
CMS Rejects Massachusetts Request to Restrict Medicaid Drug Formulary
The Massachusetts Medicaid program asked the Centers for Medicare and Medicaid Services (CMS) to waive several different requirements of Medicaid law pursuant to the federal government’s waiver authority granted in section 1115 of the Social Security Act. Among the...
Encourage confidence to act