Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update: Medicaid/CHIP News (7/11/18)

Medicaid Work Requirements As reported in the July 3 Update, a federal district court invalidated the waiver that the Department of Health and Human Services (HHS) had granted to Kentucky to allow the state to establish work requirements as a condition of Medicaid...

Washington Update: Affordable Care Act (ACA) (7/11/18)

CMS to Withhold Risk-Adjustment Payments to Insurers On Saturday, July 7, CMS announced that it will not be making the "risk adjustment" payments to insurers as prescribed by the ACA. This decision was based on a February 28, 2018, court ruling that bars the current...

Washington Update: TRICARE (7/11/2018)

Moving this Summer? Your TRICARE Options May Change (TRICARE Benefits Update, 6/27/18) Moving is a Qualifying Life Event (QLE). It doesn’t change your TRICARE eligibility, but it may change your TRICARE health plan options. Summer Travel: Getting Care While Overseas...

Washington Update: Your Input Sought (7/11/2018)

NEW Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by guardians,...

Washington Update Summary: July 3, 2018

Greetings from Washington! Last week was a busy one in Congress, the courts, and the administration. The House rejected an immigration bill, and a Senate committee approved some maternal and child health bills. One federal court ordered the administration to stop...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.