Family Engagement Resources

Explore our family engagement resources


  • Browse or search all our family engagement resources available in English or Spanish.
  • Scroll down this page to explore family engagement resources by topic area.

Browse all family engagement resources

Family engagement resource highlights by topic area


Advocacy/leadership

Block letters with the words: Tell Them Your Story, telling your story to make a change.

Telling Your Story: A Parent Guide & Workbook

The first slide of the presentation, with a quote by margaret meade and an illustration of a diverse group of people standing together.

Family Involvement in Social Change

Generic icon with four squares meant to represent a resource.

Two Briefs on Families as Partners in Medicaid and Managed Care Organizations

Preview of a document with the Family Voices logo and a subheading 'overview of family-led organizations'

Supports for Families of CYSHCN: A Quick Reference Guide to Family-Led Organizations

Preview of an email newsletter called the Resource eBlast.

Resource eBlast

A conference program from the 2019 Family Voices Leadership Conference, with photos of families and children.

2019 Family Voices Leadership Conference Presentation Slides and Materials

Graphic showing a continuing cycle of the leading by convening program: doing the work together, coalescing around issues, and ensuring relevant participation

Leading by Convening

Preview of the document summarizing the polly arango mentoring initiative.

Polly Arango Mentoring Initiative Summary

An example of the slides from the presentation in this resource.

Engagement of Family Leader Organizations in Non-CSHCN Initiatives

Cover of the Families in Program and Policy FiPPs MCH Report.

Families in Program and Policy FiPPs Reports – MCH and CYSHCN

Document titled 'growing your capacity to engage diverse communities' with a photo of a family.

Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers

A document with the Family Voices logo on top and paragraph text below.

You Are an Advocate

Assessing Family Engagement

Generic icon with four squares meant to represent a resource.

The Family Engagement in Systems Tools (FESAT and FES Toolkit)

Generic icon with four squares meant to represent a resource.

Family-Centered Care Assessment (FCCA)

Care coordination

A sample of the first page of a shared plan of care.

Shared Plan of Care (SPoC)

Screenshot of the partnering with your child's provider document.

Building Partnerships and Educating Families and Professionals about Supported Decision-Making

Screenshot of the partnering with your child's provider document.

Partnering with Your Child’s Provider

Block letters with the words: Tell Them Your Story, telling your story to make a change.

Telling Your Story: A Parent Guide & Workbook

Family-professional partnerships

Preview of a document with the Family Voices logo and a subheading 'overview of family-led organizations'

Supports for Families of CYSHCN: A Quick Reference Guide to Family-Led Organizations

A slide titled 'systems-level family engagement' with a collage of photographs showing people with disabilities coming together.

Intro to the Family Engagement in Systems Tools (FESAT) Webinar

Generic icon with four squares meant to represent a resource.

MCH Transformation-Title V Block Grant Guidance: Sections in the Guidance Where Family & Consumers are Mentioned

Generic icon with four squares meant to represent a resource.

Top 10 Reasons to Promote Partnerships between Family-to-Family Health Information Centers and Title V Block Grant Programs

Preview of a text document with the Family Voices Logo at the top.

Framework for Assessing Family Engagement

Generic icon with four squares meant to represent a resource.

Two Briefs on Families as Partners in Medicaid and Managed Care Organizations

Preview of the slide deck for the webinar on how family organizations can help shape the title V block grant.

How Family Organizations Can Help Shape and Implement the Title V Block Grant

A preview of the resource document, with text and photos of families and children.

Tips for Title V Programs: Partnering with Families

A conference program from the 2019 Family Voices Leadership Conference, with photos of families and children.

2019 Family Voices Leadership Conference Presentation Slides and Materials

Screenshot of the partnering with your child's provider document.

Partnering with Your Child’s Provider

A preview of the resource document, with text and photos of families and children.

Tip Sheet: Lessons Learned from MCH and CSHCN Title V Directors

A preview of the slides from the resource's presentation about partnering in the Title V block grant process.

Partnering in the Title V Block Grant Process

Health equity

Document titled 'growing your capacity to engage diverse communities' with a photo of a family.

Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers

A collage of family photos under the Family Voices Logo.

Best Practices in Cultural Competence

Preview of the document summarizing the polly arango mentoring initiative.

Polly Arango Mentoring Initiative Summary

Document titled 'growing your capacity to engage diverse communities' with a photo of a family.

Engaging Diverse Families in Leadership for Systems Change

Generic icon with four squares meant to represent a resource.

Collaborating with Non-Traditional Partners to Develop Diverse Family Leaders

Youth leadership

An orange logo for KASA, Kids as Self Advocates.

Starting and Sustaining A Youth Advisory Board

Preview of the slide deck from the participating in advisory groups presentation.

Participating in Advisory Groups

Working With Adult Allies<br />

Working With Adult Allies

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of